Living with Adult Cystic Fibrosis / Bronchiectasis

Events

Find local and national cycling events through the Cystic Fibrosis Foundation, CF Cycle for Life,
and walking events, greatstrides®

Resources

Cystic Fibrosis Foundation

Living with CF

American Lung Association - Understanding Bronchiectasis

Understanding your condition will help you manage your lifestyle. Positive lifestyle changes can help lessen the effects of CF and/or Bronchiectasis.

Call your provider if you are experiencing changes in your condition so we can address changes early and determine best treatment.

Keep a journal. Keeping a journal is a good way of monitoring what you eat, what physical activities you are doing, medications or vitamins you are taking and how you feel on a daily basis and any concerns or questions you might forget between your appointments.

Eat healthy. Eating healthy does not mean only eat organic foods or that eating healthy will be expensive. It means delivering the nutrients your body needs. Check out Eat Healthy, Live Healthy to get started. Ask your provider if there are foods you should avoid. Maintain the use of prescribed enzymes and vitamin supplements.

Daily physical activity. Talk to your provider about specific limitations or restrictions to your physical activity. Your provider can help you with an appropriate daily physical activity program. Generally, you will want to maintain the highest level of physical activity possible.

Airway clearance. Be vigilant in maintaining a routine discussed with your providers.

Don't start smoking. If you do smoke, your provider can discuss treatment options to help you quit. Scott & White offers a smoking support cessation program. Avoid second hand smoke.

Learn more about cystic fibrosis and bronchiectasis. Becoming knowledgeable about your chronic condition helps you and your care team. Visit the Cystic Fibrosis Foundation website for information and resources on cystic fibrosis. You can also visit the American Lung Association - Understanding Bronchiectasis.

Traveling. Altitude and climate can affect your body. You may need medical clearance to fly. Reviewing your travel plans with your provider will ensure you have all the medicications, medical supplies, and medical requirements you will need.


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